Central California Hemophilia Foundation (CCHF) has served individuals and families affected by inherited bleeding disorders in 27 counties of northern and central California since June 1969. Founded by Will and Gloria Curtis, the parents of a young man with hemophilia, the mission of CCHF is to improve the quality of life of those impacted by bleeding disorders through education, advocacy, and support. People with inherited bleeding disorders have trouble stopping their bleeding because their blood does not clot properly. They live with the danger of life-threatening bleeding as well as spontaneous bleeding in their joints, which can result in painful arthritic joints, joint damage, and limited mobility.
CCHF currently serves approximately 450 households of affected individuals and families. Many people with severe bleeding disorders receive intravenously infused clotting factor replacement medication, often several times per week and in some cases, daily. At the time of a new diagnosis, this can be overwhelming for parents. As one mom said, "CCHF means a family that understands what we are going through... It's a family that gives you strength when you wouldn't have it on your own."
As the only nationally affiliated bleeding disorder nonprofit in our service area, CCHF creates opportunities for individuals to meet others with rare disorders, while providing educational materials and programs that help them advocate for themselves and support others. Services include Youth Programs, Education Day, Camp Hemotion, emergency assistance, Lifelong Learning, and scholarships. Currently we are developing a new Life Skills Series to assist adults and teens with expanding their opportunities.
CCHF works in cooperation with her sister chapters in San Diego, Southern California, the San Francisco Bay area, and with the Hemophilia Council of California, the National Hemophilia Foundation, and the Hemophilia Federation of America.
Central California Hemophilia Foundation (CCHF) is dedicated to improving the quality of care and life for persons impacted by hemophilia and other inherited bleeding disorders through education, advocacy, and support.
General Operations support - staff and technology to conduct our programs.
Youth and Family Camp - As described in our leadership statement, it is difficult for those living with bleeding disorders to feel like they can participate in normal activities. Camps allow them to experience fun activities along with others who have similar challenges. Affected individuals can connect with others who are facing some of the same challenges, siblings meet other siblings and parents interact with other parents. Special activities such as infusion training (children with bleeding disorders have to learn to self-infuse their medication) and physical therapy occur, along with movie night, games and crafts.
Emergency Assistance and Lifelong Learning Programs - Emergency assistance funds are available for those with financial needs as a result of their health challenges and the lifelong learning program makes training, classes, coaching and tutoring opportunities available for qualified individuals of all ages.
Silent Auction donations for our Surf and Turf Crab Feed event in February every year.
Volunteers for events, administrative activities, communications, and other.
We are committed to creating a community that embraces and welcomes all members of our community.
Organization name
Central California Hemophilia Foundation
other names
CCHF
1969
Tax id (EIN)
23-7373643
Mission Category
Health Care
Operating Budget
$100,001-$250,000
Organization Need
Funding: Unrestricted, Funding: Program, Volunteers, In-Kind Donations
Local Counties Served
El Dorado, Placer, Sacramento, Yolo
Address
PO Box 163689Placer County, CA, US
Sacramento, CA, US
Yolo County, CA, US
Yuba County, CA, US
San Joaquin County, CA, US